In life-threatening emergencies, find the emergency room location nearest you. For non-life-threatening medical needs when your pediatrician is unavailable, visit one of our convenient urgent care locations.
The Cardiac Kids group distributes the book "Cardiac Kids: Parents' Resource Guide and Journal" to patients who come to Children’s Hospital Colorado's Heart Institute. This book, created by Cardiac Kids volunteers, helps parents better navigate their child’s medical treatments. It also offers personal stories from other parents and children with congenital heart conditions.
Read an excerpt from the book to hear stories from other parents
Order the Cardiac Kids Parents’ Resource Guide and Journal
To order your own copy of the "Cardiac Kids Parents’ Resource Guide and Journal," please send a suggested donation of $28.50 to cover production and shipping costs to the address listed below.
Cardiac Kids Chapter Association of Volunteers Children’s Hospital Colorado, Box 465 13123 E. 16th Avenue Aurora, CO 80045
Should you have any questions about the book or your order, please feel free to contact Cardiac Kids at 720-777-6286.
Why the Cardiac Kids parents created this guide
This book was created for parents of a child newly diagnosed with a heart disorder by parents who have already been down this path. Being told your child has a heart disorder or heart disease is a very hard thing to hear. Now you are thrown into a new kind of parenting: you're an advocate, decision-maker and caretaker for a child with a serious health condition – something you never expected would happen to you.
This book was developed because the Cardiac Kids parents have already been down the path that you are on now, and we want to share some of the things – parent to parent – that we have learned along the way. It is our hope that your journey, while it will never be easy, will at least be eased with the insights that you will find in this book. Please know that you are not alone and that we are here to help you however we can.
Table of contents:
Understanding Your Child's Diagnosis
Making Sense of the World of Cardiology
The Hospital Experience – Part One: What You Should Know
Hospital Surgical Log Sheets
The Hospital Experience – Part Two: Through the Eyes of Parents and Patients
Going Home: Caring for Your Child at Home
Your Child's Medical Journal
Your Child's Medications
Brothers and Sisters: Helping Them Cope
Open Letters From Parents
Glossaries of Heart Defects and Conditions, Cardiology Terms, Cath Lab and Surgical Procedures