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The Heart Institute has a specialized follow-up clinic for babies born with complex congenital heart defect who need palliative surgery (a series of surgeries to improve cardiac circulation and help these babies thrive and grow). Children with this type of heart defect usually require a series of three surgeries during their first two to four years of life.
The Complex Congenital Heart Disease and Development (CCHDD) Clinic is here to support your family and baby every step of the way. We will follow your newborn throughout the entire process: after any heart surgeries, through discharge home from the hospital, and throughout your child’s long-term growth and development.
In addition to caring for your baby after heart surgery and your discharge home, the CCHDD Clinic also provides follow-up care throughout childhood. As part of our long-term care, we will regularly evaluate your child’s development and coordinate with your pediatrician and other specialists as needed. This helps ensure that you have the resources you need to care for your child’s heart and to meet normal developmental milestones.
As part of our multidisciplinary care, experts from different areas of the hospital will monitor your child’s treatment. Our clinic includes specialists from pediatric cardiology, pediatric primary care, nutrition, infant feeding/development, social work, physical therapy, occupational therapy and speech/language pathology.
We see children with the following complex congenital heart defects:
One family comforts another through hypoplastic left heart syndrome (HLHS). Watch our experienced family help answer questions for parents new to heart disease.
When your child is seen in the CCHDD Clinic, our comprehensive care plan includes:
Learn more about your visit to the Heart Institute.